TTTS Foundation Diapers and Conference

We are blessed to have great support from the Twin to Twin Transfusion Syndrome community.  I am raising a single twin survivor, having lost our angel son Dex to TTTS in November of 2008.  Many of our diaper-making volunteers are families whose lives have been forever impacted in some way by their run-in with this dangerous disease that affects identical twin and triplet pregnancies; we have all had many varying outcomes, but we are united in our love for TTTS families everywhere.

My friend Jana is also raising her single surviving TTTS twin, having lost his brother in June of 2011.  She recently created 50 diapers for the Twin to Twin Transfusion Foundation to use in their bereavement packets.  They have been donated in loving memory of All TTTS Angels.
Established in 1989 out of love for Matthew Steven and Steven James, the TTTS Foundation is dedicated to providing immediate and lifesaving educational, emotional, and financial support to families, medical professionals, and other caregivers before, during, and after diagnosis of TTTS.  They are dedicated to saving babies, improving future health and care, providing NICU, special needs, and bereavement support, furthering medical research, and keeping families together the way twins are meant to be.

If you or someone you know is pregnant with twins or triplets, please have them read through these questions that should be asked at the very first ultrasound.  It could very well mean the difference between life and death.

We have been honored to be spotlighted this year at the TTTS Foundation Parents And Awareness Conference in Cleveland, Ohio July 27 - 29!!  Our patterns, flyers, and diapers will be on display at a booth during the Conference for all of the attendees.  There will be educational speakers from within the TTTS community, a Remembrance Ceremony, a TTTS Awareness Walk,  Balloon Release at Lake Erie, and so much more.  

A huge THANK YOU to Mary and Laura with the Foundation for choosing to highlight our special kind of love, spreading awareness of our project throughout the TTTS community and medical grapevine in such a big way. 

2 comments:

Heather B said...

That's so wonderful!!!!!

Unknown said...

Megan, thank you from my heart for letting us be part of your organization and I have received the precious diapers from Jana crying many tears as I held a few in my hands. I am so moved to have them to share with those experiencing the loss of their babies and am so honored to present them at the conference. I hope many, many people will express their love and compassion by making more diapers for families and their little babies. Thank you from my heart for sharing the love for your babies with so many others. God bless you and everyone please support the work of Teeny Tears.