My friend Jana is also raising her single surviving TTTS twin, having lost his brother in June of 2011. She recently created 50 diapers for the Twin to Twin Transfusion Foundation to use in their bereavement packets. They have been donated in loving memory of All TTTS Angels.
Established in 1989 out of love for Matthew Steven and Steven James, the TTTS Foundation is dedicated to providing immediate and lifesaving educational, emotional, and financial support to families, medical professionals, and other caregivers before, during, and after diagnosis of TTTS. They are dedicated to saving babies, improving future health and care, providing NICU, special needs, and bereavement support, furthering medical research, and keeping families together the way twins are meant to be.
If you or someone you know is pregnant with twins or triplets, please have them read through these questions that should be asked at the very first ultrasound. It could very well mean the difference between life and death.
We have been honored to be spotlighted this year at the TTTS Foundation Parents And Awareness Conference in Cleveland, Ohio July 27 - 29!! Our patterns, flyers, and diapers will be on display at a booth during the Conference for all of the attendees. There will be educational speakers from within the TTTS community, a Remembrance Ceremony, a TTTS Awareness Walk, Balloon Release at Lake Erie, and so much more.
A huge THANK YOU to Mary and Laura with the Foundation for choosing to highlight our special kind of love, spreading awareness of our project throughout the TTTS community and medical grapevine in such a big way.