TTTS angel mama Shanti shares her story...
"After miscarrying twice, I found out I was pregnant with mono mono identical twins at ~8 weeks. Exciting, but very. scary. news!! At 13 weeks we found out our babies were boys, and that they were showing signs of TTTS. We did not have TTTS on our minds as mono mono twinning was a big enough worry in itself. I was immediately sent to a local MFM to confirm TTTS, then sent to a TTTS specialist across the state 3 days later. We made weekly trips to Seattle to check on the boys.
At 18 weeks, our survivor (recipient), Brandon, was in heart failure, and our angel (donor), Andrew, was horribly anemic. Our MFM took me in for laser surgery but was not able to complete surgery because of the complexities of the mono mono pregnancy. We lost baby Andrew at 18 weeks. I carried the boys until 36w6d, at which time I was induced secondary to pre-eclampsia. I had a very peaceful, un-medicated delivery. We met our baby boys, Brandon and Andrew, on February 28th, 2010. Brandon's only complications were a fractured clavicle and polycythemia (high red blood cell count, as a result of blood being shunted to him) which lead to hyperbili. He was in and out of the hospital for the first 1 1/2 weeks of life for hydration and phototherapy, then has been healthy ever since. Brandon turned 2 1/2 yesterday. He is now a wild and crazy boy!
After delivering the boys, and realizing our hospital had nothing for itty bitty angels, I was on a mission to find something to provide for future angels and their families. I looked around online for organizations and/or patterns for baby hats, gowns, etc. After not finding anything in the limited amount of time I had to explore, I put my search on hold. As soon as I heard about Teeny Tears I jumped on board! I was SO excited to be able to provide itty bitty diapers for angel babies! My mom and I have been on diaper duty for the past few months. My 6 yr old daughter, India, recently joined in on the process. She has loved having special time to talk about our babies, while at the same time helping others. We delivered our first batch of diapers to Deaconess last week. It was a very bitter sweet day returning to the hospital where all of my babies were born."